Genethics

The recent advances in the genomic technology and deciphering of the human genome sequence have opened new paths in modern medicine but also posed ethical challenges and dilemmas. Coverage and reimbursement of genetic tests, genetic testing provided directly to the public (also known as DTC genetic testing), intellectual property of genomic information, genetic discrimination, informed consent, genome statutes and legislation, as well as personal genome access are some of the new challenges that genomic evolution have created.

Genethics aims to address these challenges and this working group is currently performing surveys in various target groups in several countries to address some of the above issues to allow a better assessment of the ethical legal, and social framework of genetic testing in several countries.

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